is the Director of
Prader-Willi Alliance of N.Y., and serves on a
Developmental Disabilities Planning Council as parent
the National Prader-Willi Syndrome Association,
2006 and is co-chair for programs on infant through school
age issues at the 28th
Association, USA/Alliance Conference, 2006.
a Parent Mentor
for National Prader-Willi Association, USA, an on the
as a writer and reviewer. She will be co-writing
out later this year.
through sympathy but
through presidence, perseverance and consistency.