Nina
is the Director of
the
Prader-Willi Alliance of N.Y., and serves on a
grant
for the
Developmental Disabilities Planning Council as parent
Co-chair. She
is
on
the National Prader-Willi Syndrome Association,
USA Awareness
Committee,
2006 and is co-chair for programs on infant through school
age issues at the 28th
Annual
National
Prader-Willi
Association, USA/Alliance Conference, 2006.
She is
a Parent Mentor
for National Prader-Willi Association, USA, an on the
Publication's committee
as a writer and reviewer. She will be co-writing
a Sibling
book due
out later this year.
Not
through sympathy but
through presidence, perseverance and consistency.